- Granulomatosis with Polyangiitis (GPA)
- Interviews
Mary's interview
How did all start?
Cough congestion fatigue hearing loss
Do you already have a diagnosis? How long did it take you to get it?
Two months from onset of symptoms
For what medical specialties have you been treated? What has been the most useful specialty for your?
Rheumatologist pulmonologist otolaryngologist ENT endocrinologist nephrologist ophthalmologist and more
What has been the most useful thing for you so far?
The fact all docs coordinate treatment
What have been your biggest difficulties?
Unable to get rid of cough fatigue and permanent loss of hearing
How has your social and family environment reacted? Have your social or family relationships changed?
I have become isolated because I cannot plan ahead I gave too many gad days
What things have you stopped doing?
Walking, church is sporadic, entertaining, taking grandchildren places, going to parties bicycling.
What do you think about the future?
My katie few is good
So far, which years have been the best years in your life? What have you done during them?
My fifties and sixties. Travel gardening yoga bicycling big visiting and having dinners and oarties
What would you like to do if you didn’t have your condition?
Teacel
If you had to describe your life in a sentence, what would it be?
Quiet
Finally, what advice would you give to a person in a similar situation?
To keep moving I do weights 3 x a week swim to in the summer Pilates in Saturday's. I have made new friends who are patient with me
