A Guillain-Barre Syndrome interview , Guillain-Barre Syndrome.

francois's interview


How did all start?

Increasing weakness. Sep-Nov 2017: Progressive impossibility to walk.

Do you already have a diagnosis? How long did it take you to get it?

Diagnosed in Dec 2017 CHUV hospital Lausanne Ca 1 week

For what medical specialties have you been treated? What has been the most useful specialty for your?

Generalists then Neurologists

What has been the most useful thing for you so far?

Diagnosis then rehabilitation

What have been your biggest difficulties?

Duration of the recovery

How has your social and family environment reacted? Have your social or family relationships changed?

Not real support. I was considered guilty for the disease.

What things have you stopped doing?

Walking with gradients became difficult

What do you think about the future?

I am lucky: GBS is not the worst disease

So far, which years have been the best years in your life? What have you done during them?

Years immediately after the end of my studies

What would you like to do if you didn’t have your condition?

Walk in the mountains

If you had to describe your life in a sentence, what would it be?

It's fine but going too rapidly

Finally, what advice would you give to a person in a similar situation?

GBS means a long time for recovery, but the majority of the nerves capacity will come back within one year.


Sep 8, 2019

By: francois

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