Question - Guillain-Barre Syndrome

2

Paid Research $170

Asked 5 years ago Annay 53

Interview opportunity for adults and care partners of adults who have Guillain-Barré syndrome (GBS)
 
Screener
 
Details:
The insights and ideas gleaned through these interviews will help the Sponsor to include this important perspective as they design future clinical trials. Future trials could lead to identifying a new medicine to support people with this rare disease.
 
**PLEASE READ REQUIREMENTS BELOW**
 
Requirements:
  • Be either an:
  • Adult who has been diagnosed with GBS (18 years old or older when diagnosed)
  • Care partner of an adult with GBS (who was diagnosed when 18 or older) and who has weekly interactions with that individual
  • It is ideal that care partners are associated with an adult with GBS who is also being interviewed
  • Able to communicate verbally and fluent in English, Spanish or French
  • We are seeking a broad range of insights on individuals living with GBS and their care
  • Participants should not be diagnosed with CIDP (chronic inflammatory demyelinating polyneuropathy), to their knowledge
  • Participants should have had a Gullain-Barré syndrome disability scale score of 3 or greater at the time of hospital admission – we do not expect all individuals to know their score. Therefore, as a proxy for this measurement, participants are required to have been previously hospitalized for their condition. Their level of mobility at the time of hospital admission should align with a score of 3 or greater on the chart below. Care partners should have experience with an individual with GBS who has been hospitalized.
 
 
Details:
  • 60-minute interview
  • ~30 minutes of pre-work
  • From home
 
Receive:
$170
https://gigs.savvy.coop/gbs-opp/?r=iudre

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I was diagnosed with GBS in 1985, I was completely paralyzed except for my trunk, I was wheel chair and bed bound two years. I could not feed or bath my self, I had severe depression, I was on massive doses of prednisone I gained 100 lbs. from the steroids. I now suffer residual effects from GBS, upper arm strength none, upper thigh strength none, I suffer now with RA, Sjögren's syndrome and Fibromyalgia.  Autoimmune disease is horrible, it's robbed me of everything

Answered 5 years ago Stacey England 43
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