Norsk Hemokromatoseforbund
Details
- Name: Norsk Hemokromatoseforbund
- Phone: +47 93 40 53 22
- Website: http://www.hemokromatose.no
- Contact
Location
Description
This is the national patient organisation in Norway. It was founded in may 1999 and is registered in Norway as a charity organisation. The initiator was Mr. Rolv Sverre Brandtzæg who was the president 1999-2007. Mr. Harald Melhus then took over 2007-2009, and was then followed by Mr. Ketil Toska 2009-present. The Executive Officers have been Mr. Rolv Sverre Brandtzæg 1999-2007, and Mr. Ketil Toska 2007-present. The organisation has a membership fee of NOK 150 per year and is approved by Norwegian authorities for financial support. The financial support is about NOK 950 per member paying the yearly membership fee. Currently there are 540 registered members of which about 400 manages to pay the mebership fee each year.
Norsk Hemokromatosefobund (NHF) is the Norwegian name of the association. NHF is member of FFO (http://www.ffo.no/Organisasjonen/About-FFO/), EFAPH (http://efaph.eu/), and HI (http://haemochromatosis-international.org/). The association has a scientific committee directly associated and is managing the committees financial funds.
The association is running an open web page, a closed Facebook page for its members, and a closed Facebook page for all HH people in the Nordic countries. NHF has issued three brochures in Norwegian, of which one is only handed out to the paying members.
The association has one person running the daily operation as Executive Officer and this is based on volunteer work, and a board of 5 members and 2 representative members. The board members are frequently representing Norway abroad in the meetings at IBIS (http://bioiron.org/home.aspx), EIC (http://www.european-iron-club.eu/), EFAPH and HI. 2 members from the Norwegian board currently hold positions in the board at EFAPH and 1 member is holding a position at the board at HI.
Details
- Name: Norsk Hemokromatoseforbund
- Phone: +47 93 40 53 22
- Website: http://www.hemokromatose.no
- Contact
Location
Description
This is the national patient organisation in Norway. It was founded in may 1999 and is registered in Norway as a charity organisation. The initiator was Mr. Rolv Sverre Brandtzæg who was the president 1999-2007. Mr. Harald Melhus then took over 2007-2009, and was then followed by Mr. Ketil Toska 2009-present. The Executive Officers have been Mr. Rolv Sverre Brandtzæg 1999-2007, and Mr. Ketil Toska 2007-present. The organisation has a membership fee of NOK 150 per year and is approved by Norwegian authorities for financial support. The financial support is about NOK 950 per member paying the yearly membership fee. Currently there are 540 registered members of which about 400 manages to pay the mebership fee each year.
Norsk Hemokromatosefobund (NHF) is the Norwegian name of the association. NHF is member of FFO (http://www.ffo.no/Organisasjonen/About-FFO/), EFAPH (http://efaph.eu/), and HI (http://haemochromatosis-international.org/). The association has a scientific committee directly associated and is managing the committees financial funds.
The association is running an open web page, a closed Facebook page for its members, and a closed Facebook page for all HH people in the Nordic countries. NHF has issued three brochures in Norwegian, of which one is only handed out to the paying members.
The association has one person running the daily operation as Executive Officer and this is based on volunteer work, and a board of 5 members and 2 representative members. The board members are frequently representing Norway abroad in the meetings at IBIS (http://bioiron.org/home.aspx), EIC (http://www.european-iron-club.eu/), EFAPH and HI. 2 members from the Norwegian board currently hold positions in the board at EFAPH and 1 member is holding a position at the board at HI.