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HFE hereditary haemochromatosis diet. Is there a diet which improves the quality of life of people with HFE hereditary haemochromatosis?

Diet and HFE hereditary haemochromatosis: foods that patients report help their quality of life, with a medically reviewed summary.

HFE hereditary haemochromatosis diet
11 answers
No.
Generally a normal, healthy diet is recommended.
It is not possible to treat haemochromatosis with diet.
It is not recommended to avoid any particular food groups including red meat.
Caution with alcohol is recommended.
Avoid Vitamin C supplements and raw shellfish (possible contamination with a bacteria that thrives on high iron levels).

Posted May 21, 2017 by Tony Moorhead 2051
Eat less food with iron in it, like spinach etc ...

Posted Jun 3, 2017 by bewiki 4317
Eating a low iron diet helps. Avoid red meat and iron fortified foods. Also foods with extra vitamin c which can increase iron absorption. Tea and coffee are good ways to block iron absorption

Posted Jul 22, 2017 by Tina 1501
Many people say no, but for me I would say yes. I've noticed that cutting out red meat, stopping taking vitamin C tablets, and avoiding alcohol helps my ferritin levels drop so I don't have to have as many phlebotomies as I would have to if I kept including those things in my daily life. You do need to avoid raw shellfish as there is a bacteria in those that can interact negatively with excess iron and be fatal.

Posted Jul 22, 2017 by alohaitsaj 1501
Some think that avoiding heme iron helps; some don't. Do avoid large doses of Vitamin C supplements, as C helps in the storage of iron. Drinking little to no alcohol is good practice. Alcohol also promotes iron retention.

Posted Jul 22, 2017 by Salena 2001
This question gets asked a lot. It is not advisable to change your diet or cut anything from your diet. Venesections remove more iron than you can ever consume from food. It is advisable not to take vit c with meals as this helps with the absorption of iron. Stick to a healthy balanced diet as we still need all the vitamins and minerals to live a healthy life, depriving ourselves of these essential vitamins and minerals could lead to ill health.

Posted Jul 23, 2017 by Lorna 701
Eating less red meat, iron rich foods helps.

Posted Jul 23, 2017 by Warbychick 1901
Avoiding iron supplements and foods high in iron helps slow the loading of iron. Avoiding alcohol slows the liver damage that can occur with iron overload. Not consuming foods high in Vitamin C with foods high in iron slows iron absorption.

Posted Jul 23, 2017 by Stacy 550
Do not take any kind of iron pills or multivitamins which often could have more iron than what is stated. Do not take vitamin C pills (pure ascorbic acid). Avoid to drink citrus juices 1 hour before and 1 hour after a meal. Do not eat a lot of beans and lentils. Do not eat liver and blood products. Drink rather coffee or tea to the meals. Avoid drinking alcohol or limit the intake to much less than what is the health recommendation for your country.

Do not process you food in cast iron. Especially not if you also add citrus juice when cooking.

Otherwise eat a varied and healthy diet. That include to make your food from scratch. Avoid too much processed food, and stay away from junk food (including hamburgers,and everything out there being deep fried). Avoid too much intake of sugar products.

Stay away from raw oysters, clams and shellfish especially in the tempered waters due to Vibrio vulnificus bacteria. Stay away from under cooked/fried pork meat due the Yersinia entereocolitica bacteria.

Posted Jul 25, 2017 by Ketil Toska 2051
Iron fortified foods and heme iron foods are best avoided. Personally Paleo food has been beneficial, avoiding raw shellfish

Posted Aug 2, 2017 by Natalie 2000
Eating clean has helped me feel better and lose some weight, however I have read that diet really doesnt matter.

Posted Sep 8, 2017 by Eileen 700

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Discover as one of the first in Bergen, Norway. Both my brothers were caught because of me. Become the first blodd donor with Haemochromatosis on Haukeland sykehus. Have 1round 130 accepted blood donations and the double for sience.. Very happy to b...
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Until March 2016 I did not know I had haemochromotosis, but the signs and symptoms have been there for three years chronic fatigue, aching joints, lack of libido and at times crankier than normal being a working mum of two teenage girls and a wife of...
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I was feeling sick and went to my GP, who said I need some ferritin tablets and calsuim, well I got it and drank it , like my Gp told me, the following day I started icthing, then it sarted out with big red marks on my arms and all over my body, phon...
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I was diagnosed three years ago after both my parents tested positive for the HHC genes. My Dad is a C282Y carrier but my mum is Homozygous with 2 copies of the H63D gene, which was sadly diagnosed far too late. Both my sister and myself are Compound...
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I was feeling achy in joints and tired for few years before diagnosis,gene test not offered or mentioned when living ln England until when came to Ireland, GP ordered gene test after blood test and talk showed signs of haemachromotosis.I would recomm...

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