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How do I know if I have HFE hereditary haemochromatosis?

What signs or symptoms may make you suspect you may have HFE hereditary haemochromatosis. People who have experience in HFE hereditary haemochromatosis offer advice of what things may make you suspicious and which doctor you should go to to receive treatment

Do I have HFE hereditary haemochromatosis?
8 answers
The only way to be sure is to have the genetic test.
Symptoms and family history can raise suspicion.
However the symptoms are similar to many other conditions.
The blood tests for serum ferritin and transferrin saturation may also raise suspicion but are not conclusive. Again there are many causes for raised results, particularly with ferritin.

Posted May 21, 2017 by Tony Moorhead 2051
That can only a doctor/medicine/nurse tells you.

Posted Jun 4, 2017 by bewiki 4317
By being tested for it

Posted Jul 22, 2017 by Tina 1501
Through genetic testing you can confirm if you have the gene mutations for HFE. To determine if genetic testing is necessary, checking your ferritin, iron, and iron saturation levels can be beneficial (or checking with your family members to find out if they have HFE or if they are carriers).

Posted Jul 22, 2017 by alohaitsaj 1501
Symptoms include fatigue, hypothyroidism, abdominal pain, liver disease (cirrhosis or cancer), heart disease, some cancers, decreased libido, abnormal heart rhythm, diabetes, arthritis, erectile disfunction.

Posted Jul 22, 2017 by Salena 2001
Fatigue
Loss of libido

Posted Jul 23, 2017 by Warbychick 1901
This has been thoroughly explained further up.

Posted Jul 25, 2017 by Ketil Toska 2051
High iron and ferritin levels along with other family members having Haemachromatosis, especially direct family members

Posted Aug 2, 2017 by Natalie 2000

Do I have HFE hereditary haemochromatosis?

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World map of HFE hereditary haemochromatosis

Find people with HFE hereditary haemochromatosis through the map. Connect with them and share experiences. Join the HFE hereditary haemochromatosis community.

Stories of HFE hereditary haemochromatosis

HFE HEREDITARY HAEMOCHROMATOSIS STORIES
HFE hereditary haemochromatosis stories
Discover as one of the first in Bergen, Norway. Both my brothers were caught because of me. Become the first blodd donor with Haemochromatosis on Haukeland sykehus. Have 1round 130 accepted blood donations and the double for sience.. Very happy to b...
HFE hereditary haemochromatosis stories
Until March 2016 I did not know I had haemochromotosis, but the signs and symptoms have been there for three years chronic fatigue, aching joints, lack of libido and at times crankier than normal being a working mum of two teenage girls and a wife of...
HFE hereditary haemochromatosis stories
I was feeling sick and went to my GP, who said I need some ferritin tablets and calsuim, well I got it and drank it , like my Gp told me, the following day I started icthing, then it sarted out with big red marks on my arms and all over my body, phon...
HFE hereditary haemochromatosis stories
I was diagnosed three years ago after both my parents tested positive for the HHC genes. My Dad is a C282Y carrier but my mum is Homozygous with 2 copies of the H63D gene, which was sadly diagnosed far too late. Both my sister and myself are Compound...
HFE hereditary haemochromatosis stories
I was feeling achy in joints and tired for few years before diagnosis,gene test not offered or mentioned when living ln England until when came to Ireland, GP ordered gene test after blood test and talk showed signs of haemachromotosis.I would recomm...

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