The Maddi Foundation ( research into treatment for SPG15 i.e. Spastic Paraplegia Gene 15)

THE MADDI FOUNDATION - A recently formed charity that is funding research programmes like the creation of the SPG15 Gene Therapy Program which is being taking place in Sheffield UK. This is groundbreaking result which has been fundunded through year one to Proof of Concept. 

We also in touch with other researchers around the world who are engaging in research with anything related to zfyve26 gene / i.e. SPG15

please do get in touch if you are a patient, scientist , clinician who is interested in what we do. Thank you