116 people with अलपोर्ट सिंड्रोम have joined the DiseaseMaps community map. They have shared 176 first-person answers and 9 stories about living with the condition.
7 अलपोर्ट सिंड्रोम वाले लोगों ने एसएफ 36 सर्वे ले लिया है. Mean of अलपोर्ट सिंड्रोम is 1482 points (41 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey