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Which advice would you give to someone who has just been diagnosed with Hirschsprung Disease?
Advice for the newly diagnosed with Hirschsprung Disease, written by people who have lived it. What they wish they had known on day one.
Try not take it all in at once. Baby steps, take in slowly.
Do the research, reach out for support.
Not many people know about Hirschsprung's, so educate them with your knowlegde.
And finally, it WILL be ok
Do the research, reach out for support.
Not many people know about Hirschsprung's, so educate them with your knowlegde.
And finally, it WILL be ok
Posted Sep 28, 2017 by Stefania 2070
Most people being diagnosed with the disease are too young to remember being "first diagnosis". Its 2018, a lot of hope and high end technology regarding treatment. Best advice, find the best doctor that specializes in this disease. Some people have lost thier bowels because they had a pull through too soon or too late. Most importantly, hang onto faith and Truth.
Posted Oct 25, 2018 by Mallory 1500
Don’t panic. I’m proof you can do it, you can live and have a very happy life with this disease. As a parent with a child with HD, ask a lot of questions. Know it will get easier. As an adult diagnosed, find your best diet. What works for you. Get advice no matter what if surgery is the best.....it probably will be. Don’t be afraid, i had this surgery 48 years ago, experimental, and I’m still here. And it has come so much further now!
Posted May 15, 2019 by RachelPM 2500
It's a life long journey but for some people everything fixed with pull through. Hang in there
Posted Feb 5, 2021 by Dawud Mohamed Idham 3550
