What are the best treatments for Hirschsprung Disease?

Treatments for Hirschsprung Disease: what real patients say works for them, alongside a medically reviewed overview citing sources like NIH GARD and Orphanet.

5 answers

Surgery
Specific Diet
Probiotics

Posted Sep 28, 2017 by Stefania 2070

Colostomy, pull through surgery

Posted Oct 25, 2018 by Mallory 1500

The pull-through surgery is most common. Me personally, I had close to 3 feet of colon removed and then the colon pulled through.

Posted May 15, 2019 by RachelPM 2500

Pull through or a ace/mace procedure

Posted May 15, 2019 by Samie 1500

Ileostomy/ colostomy and after that pull through surgery

Posted Feb 5, 2021 by Dawud Mohamed Idham 3550

Hirschsprung Disease treatments

World map of Hirschsprung Disease

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Stories of Hirschsprung Disease

HIRSCHSPRUNG DISEASE STORIES

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BY

BORN WITH TCHD

I was diagnosed with HD at a day and half old. I had a colostomy bag for a year and half and then had the pull thru done. I was diagnosed with TCHD (Total Colon Hirschsprungs Disease). I had my ups and downs throughout the years with multiple surger...

1131

by Martin Modrak

TONY'S JOURNEY

In July of 2009 we found out our son had Hirschsprung's disease. He had it all his life but was misdiagnosed. We thank god for Dr Harmond. He found it and started treating Tony. We had a up hill battle though. We had a pull thru done, but w...

1089

by Tina mom to Tony( 15 )

MI PEQUEÑO LEÓN

Tuve un embarazo normal y saludable, al igual que el nacimiento de mi hijo, pero a las dos semanas de nacido y después de expulsar todo el meconio empezó con constipación. Dejó de evacuar diario, aunque comia, dormia y su comportamiento era norma...

1081

by Claus

KRYLSEAN

Diagnosed at 1 week old. First pullthrough at 1 month old. 18 inches was removed from his intestines. Pooped on his own after the operation. Stopped pooping at 2 months and 2 weeks old. Found out he was lactose intolerant, too. Nutramigen was...

1012

by Krylsean Dizon

HIRSCHPRUNG'S MOMMY

I am the mom to a 3yr old 28 weeker. My son, Gabriel, was expected to have Hirschprung's since the beginning, but wasn't diagnosed till 11months theough biopsy. He had has pull through a week later. He only had to have 7cm taken. We are gaving a bit ...

1001

by Kristina Ferguson

What are the best treatments for Hirschsprung Disease?

Treatments for Hirschsprung Disease: what real patients say works for them, alongside a medically reviewed overview citing sources like NIH GARD and Orphanet.

Hirschsprung Disease treatments

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