Story about Hereditary Neuropathy With Liability To Pressure Palsies HNPP .

How Yoga killed my hands

Jul 22, 2017


Okay that's a bit dramatic, but that's how it manifested. During the second week of my trip to Argentina, relaxing at a wonderful yoga retreat, I attempted doing downward dog. The next morning - that was it - pins and needles in my arms, and no more feeling. After returning it only persisted, getting worse, with shooting pains and tremors, as well as no grip whatsoever. A hop, skip and an EMG later, I was diagnosed with Hereditary Neuropathy with Liability to Pressure Palsies (HNPP). That was three months ago and I still haven't got my hands back, adding foot drop, chronic fatigue, pain and general numbness to the list of symptoms. 

But I found some amazing Facebook groups, who are the only HNPP'ers with actual information - moreso than the neurologists, GPs and doctors. As a result I started a resource website for others to get by day to day. It has tips, advice and the latest information out there about HNPP.

Visit it here: HNPP Wellbeing - https://hnppwellbeing.com

I hope it helps others and hope to speak to you all soon!

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