Saving Case & Friends

 

Saving Case & Friends (SCF) exists to find and fund a cure for Hunter Syndrome / Mucopolysaccharidosis II through research and advocacy. Saving Case & Friends is a strong and powerful voice for children and adults with Hunter Syndrome, bringing together Hunter Syndrome families and advocates with researchers, industry, and regulators, raising funds for and funding the most promising research with potential for in‐their‐lifetime treatments, assisting researchers and industry with designing research studies with the most promise for our community, and advocating for the most effective and efficient system of clinical research, evaluation, and approval.

SCF is known for its powerful awareness and fundraising campaigns such as Project Alive and the “Alive” song.