FIGHTING WITH HH

Aug 5, 2017

By: annoor

Hypothalamic Hamartoma

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I AM FROM MAURITIUS ,SMALL ISLAND FROM THE INDIAN OCEAN .MY SON NOW AGE 4 YRS 7 MONTHS.HE STARTS HAVE TONIC SEIZURES FOLLOWING WITH HEAD DROPS MORE THAN100 TIMES DAILY AT THE AGE OF 6 MONTH.WE HAVE TRAVELLED FROM MAURITIUS TO MANIPAL HOSPITAL BANGALORE FOR TREATMENT,1ST SURGERY WAS DONE IN APRIL 2014,2ND SURGERY DONE N 2015,GAMMA KNIFE WAS DONE IN 2016,STILL HAVE GELASTIC SEIZURES MORE THAN 10 TIMES DAILY.WE HAVE CONTACT TEXAS CHILDREN HOSPITAL BUT WE CANT GO THERE FOR TREATMENT BECAUSE IT IS TO COSTLY.WE ARE HELPLESS ,BECAUSE DR IN MAURITIUS CANT DO ANYTHING.WE WOULD LIKE TO DO LASER ABLATION IN TEXAS CHILDREN HOSPITAL.