A Imperforate anus interview , Tethered Spinal Cord Syndrome.

Szilvia's interview


How did all start?

Son born with IA and tethered spinal cord, overactive bladder.

Do you already have a diagnosis? How long did it take you to get it?

Find out at the birth of our son.

What have been your biggest difficulties?

Very small communications by doctors, specially no "After Care" we would get apart of the operations.

How has your social and family environment reacted? Have your social or family relationships changed?

Yes, everyone thought our son is fixed after operation and not realizing this is an ongoing lifetime condition.

What things have you stopped doing?

Social life

What do you think about the future?

Trying to teach son to live life as normal as possible.


Oct 13, 2018

By: Szilvia

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