Story about Interstitial Cystitis .

Suffering for a.long time

Jun 23, 2026


When I was younger my mom would take me to the ER because of my stomach pain the doctors would always say it was in my head.  After I got married and had our son 2 months early I had dysplasia. After 2 years of problems we thought was from my emergency c-section and adhesions I got pregnant with our second son.  After he was born my periods got so much worse with the pains and clotting.

I had an ablation and found out I had endometriosis all over and because of that my stomach muscle and uterus were connected. I had adhesions and cysts all inside. It helped for 3 years than started getting bad again.

I decided after months of non stopped pain, migraines and non stop bleeding I was finally ready to have a hysterectomy. After my surgery which was a full abdominal Hysterectomy was over. I found out both my ovaries had to go I had so much endometriosis that he had to scrape it off my bladder intestines everything also my stomach muscle and uterus was connected again. 

About a month after surgery my pain got much worse. The Dr diagnosed me with IC after UTI test.  I have had a year of pain okay days and really bad pain.  I'm still doing research and trying different foods and medicines. I have stopped Zumba and working out because I was in so mush pain days after. I'm getting ready to start aqua exercise 2 nights a week. 

So I think I have had IC for a long time just never diagnosed until 2014.

That my life as up to now! 

 

Know someone who should read this story? Share it

1 comment
0

Hi Dawn! Thanks for sharing your story. I was diagnosed 18 mo ago. I know it can be a tough thing to learn to live with but from my experience and interactions thus far, it seems most of us are able to find ways to adapt to living with it and do well and live fairly normal lives. Hang in there! There are lots of different treatment options. Hope you and your Urologist will find what works best for you very soon.

Commented 9 years ago Rashelle 13

Login or register to leave a comment


Interstitial Cystitis and depression

Interstitial Cystitis and depression

What is Interstitial Cystitis

What is Interstitial Cystitis

History of Interstitial Cystitis

What is the history of Interstitial Cystitis?

Interstitial Cystitis is also known as...

Interstitial Cystitis synonyms

Interstitial Cystitis advice

Which advice would you give to someone who has just been diagnosed wit...

Interstitial Cystitis diagnosis

How is Interstitial Cystitis diagnosed?

Couple and Interstitial Cystitis

Is it easy to find a partner and/or maintain relationship when you hav...

Interstitial Cystitis cure

Does Interstitial Cystitis have a cure?