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Living with Kallmann Syndrome. How to live with Kallmann Syndrome?

Can you be happy living with Kallmann Syndrome? What do you have to do to be happy with Kallmann Syndrome? Living with Kallmann Syndrome can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Kallmann Syndrome

Living with Kallmann Syndrome
6 answers
The physical side of Kallmanns can be managed. If you have Brittle bones it can be harder than if not, but it's the emotional side that can be difficult. Kallmanns is rare, it can leave you feeling Isolated, lonely outcast, defective. Your body doesn't work. You aren't able to do the basic things that your body should just do. Conceiving a child. Having a family becomes a missive medical procedure. Nothing is natural.

Posted Feb 22, 2017 by Kelly 1000
Tough one to answer, everybody's experience with the condition is different.
Early diagnosis and treatment helps a lot.
You can most certainly be happy living with Kallmann syndrome if you are fortunate in finding the right partner early. Some of the physical and psychological issues can make forming relationships difficult for some people with Kallmann syndrome but these can be overcome with time.
Fertility issues can bring pressure on both men and women with KS but there are good treatments available and a high success rate for treatment but it does take a lot of perseverance.

Posted Feb 22, 2017 by Neil Smith 4395
Antidepressants help. You can be happy and live a full life if on treatment. Life is difficult not being on treatment.

Posted Mar 10, 2017 by Miriam 1050
You just have to accept the condition, which can be tricky because of the fear of your peers during adolescence, and the idea of being under medication for the whole life. But It's not that bad, you can have an happy life if you accept your condition

Posted Jun 11, 2017 by Remo 2050
You can live healthy with Kallmann's syndrome as long as you have the right support network

Posted Aug 4, 2017 by Nick K.D Chaleunphone 1770
Life with Kallmann Syndrome can be very normal. Hormone replacement is essential and there are many options to choose from.

Posted Dec 1, 2017 by Aaron Davis 4150

Living with Kallmann Syndrome

Kallmann Syndrome life expectancy

What is the life expectancy of someone with Kallmann Syndrome?

8 answers
Celebrities with Kallmann Syndrome

Celebrities with Kallmann Syndrome

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Is Kallmann Syndrome hereditary?

Is Kallmann Syndrome hereditary?

5 answers
Is Kallmann Syndrome contagious?

Is Kallmann Syndrome contagious?

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ICD9 and ICD10 codes of Kallmann Syndrome

ICD10 code of Kallmann Syndrome and ICD9 code

5 answers
Natural treatment of Kallmann Syndrome

Is there any natural treatment for Kallmann Syndrome?

4 answers
Kallmann Syndrome diet

Kallmann Syndrome diet. Is there a diet which improves the quality of life ...

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History of Kallmann Syndrome

What is the history of Kallmann Syndrome?

4 answers

World map of Kallmann Syndrome

Find people with Kallmann Syndrome through the map. Connect with them and share experiences. Join the Kallmann Syndrome community.

Stories of Kallmann Syndrome

KALLMANN SYNDROME STORIES
Kallmann Syndrome stories
What can you say my story of how I was born as an http://en.wikipedia.org/wiki/Intersex/DSD person and living my life is as unique as the next person. I’m no different from anyone else, other than being born with an Intersex/ DSD (http://en.wikipe...
Kallmann Syndrome stories
My name is Ivan. I'm a clinical psychologist. I'm 40 years old and I have Kallman's syndrome. Unfortunately, it was diagnosed only a couple of years ago (in 2009).  My first 36 years of life without the diagnosis were not so bad, however, I develo...
Kallmann Syndrome stories
Short version to start with..... Born in 1969. Went to Bradford University to study Biomedical Sciences Was dismissed as a "late bloomer" or "late starter" every time I went to the doctor throughout my teenage years. Diagnosed at 23 at Royal ...
Kallmann Syndrome stories
When I was little and found out my Syndrome was a confused time, how doctors told me what my life will be and how could I live when been a grown up person. Now that I am 40 and knowing people that been there like me and talk about our story I can say...
Kallmann Syndrome stories
I have a Portuguese blog where I talked about my syndrome and my desire to become mom.  Is called https://cantinhodossmurfs.wordpress.com

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Kallmann Syndrome forum

KALLMANN SYNDROME FORUM
Kallmann Syndrome forum
We are currently seeking research participants who have been diagnosed with idiopathic hypogonadotropic hypogonadism (IHH), including Kallmann Syndrome (KS), for such a study.  This study is being run through the Pennsylvania State University De...

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