parents of infants and children with Kernicterus. It's a big word with big implications, forever staining a specific area in the brain yellow when jaundice is mismanaged.
We are a group of parents working hard to maximize our children's futures, forever learning new ways to assist them so that their valuable voices can be heard.
We we look to prevent via education - jaundice can do that and this simple knowledge can push at risk babies toward proper treatment and testing.
our hearts and souls are very much bound the the families walking alongside us too. We are forever looking for new ways to encourage one another in the journey and propel the research that will help our children tremendously. We We welcome all caregivers, parents, and individuals affected by Kernicterus to join our coomunity www.facebook.com/groups/kernicterus