What are the best treatments for Klippel-Feil Syndrome?

Physiotherapy

Treatment for Klippel-Feil Syndrome (KFS) is generally symptomatic and supportive. Management depends on the features and severity in each person, and can be life-long. Careful evaluation, consistent follow-up, and coordination with various specialists are needed to improve outcome and make sure that no related diagnosis is missed.

There are various conservative therapies available, including the use of cervical collars, braces, traction, physical therapy, non-steroidal anti-inflammatory drugs (NSAIDs), and various pain medications. However, for many people with KFS, symptoms are progressive due to degenerative changes that occur in the spine.

Surgery may be indicated for a variety of reasons, including persistent pain; neurologic deficits; cervical or craniocervical instability; constriction of the spinal cord; or to correct severe scoliosis. Some people with KFS may need surgery to repair other skeletal abnormalities, or those related to the heart, kidneys, ears, eyes, or other parts of the body.

Those at an increased risk for neurological complications should be regularly monitored by their health care providers and may be advised to avoid activities that could lead to trauma or injury to cervical vertebrae.

Aquatic therapy, muscle relaxers, massage, heating pads, hot tub is one of the best treatments I’ve found. I’ve been to states where Marijuana is legal and that really helped my pain by loosing up the muscles it kind of makes the pain go to the back, its still there, it doesn’t get rid of it but it you’re not as focused on it.. it allowed me to focus on other things. I’ve also had to take narcotics at times over the years to control the pain. Meditation and positivity helps as well. I also have a councilor who helps me deal with the depression from the pain, as well as dealing with my limitations. It gets lonely and frustrating at times.

To avoid pain = exercise, stretching of strained muscles.