Klippel Trenaunay Syndrome

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Ezekiel Hauwaho.
Zeke for short.
Was born with KTS in 1993. Lower Hutt, Wellington, New Zealand. It is on my left leg.

At the time, the Doctors diagnosed the condition wrong.

Has affected me my whole life.

From about the age of 15 I started wearing compression stockings and taking blood thinners once the doctors finally knew what the condition was, they could better help.

I manage to lead a fairly normal life, although I do get ‘cellulitis’ A LOT.

Which sucks.

I have tailored my life around my condition. I have my own small business so if I need time off I can just take it. Found it hard to explain to bosses my condition and why I was often calling in sick.

I have a lot I could talk about.... but want to keep it brief here.

My goal is to just reach out to any and all New Zealanders with either KTS or KTWS.

And maybe try and meet somewhere one day and an organised conference.

I know they have an annual conference for KTS in the U.S.

Perhaps we could all go over one day in the future.

Please feel free to get in contact with me.

Zeke
0274900325

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