- Langerhans Cell Histiocytosis
- Interviews
Snowy's interview
How did all start?
Started at work I was referred to occupational lung hospital
Do you already have a diagnosis? How long did it take you to get it?
Yes was diagnosed with lch and copd
For what medical specialties have you been treated? What has been the most useful specialty for your?
No treatment no information as yet just more scans
What has been the most useful thing for you so far?
Nothing
What have been your biggest difficulties?
Pain and anxiety
How has your social and family environment reacted? Have your social or family relationships changed?
Yes people are scared to talk to me as it’s the unknown
What things have you stopped doing?
Smoking and working
What do you think about the future?
Not sure
So far, which years have been the best years in your life? What have you done during them?
Having my children
If you had to describe your life in a sentence, what would it be?
Right now painful and sad also just lost my dad to cancer and supporting my brother with brain cancer
Finally, what advice would you give to a person in a similar situation?
Chin up try to be positive
