This is a complicated question and again depends on the severity of the patient's condition as well as any co-existing
health issues. I am in my 50's and know of people older than me with LS. My life expectancy has more to do with my risk of heart disease and/or diabetes than Larsen Syndrome.
We had no idea when we were pregnant that our son had LS. In fact we didn't know he had LS till he was 1 month old. Bryce was born with both hips and his right knee dislocated and clubbed feet. The first doctor we took him to thought that Bryce...