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What are the best treatments for Leukodystrophy?

Treatments for Leukodystrophy: what real patients say works for them, alongside a medically reviewed overview citing sources like NIH GARD and Orphanet.

Leukodystrophy treatments
3 answers
Honestly that's a hard one to say because I just know what's going on with my girls and the medications and have helped them. I know from seeing them have the botox procedures done that has helped them a little with their tone to where they are not as tight as they are in some places.
Posted Aug 6, 2017 by cjackson1982 1500
Stem cell treatment
Posted Aug 7, 2017 by Todd 2340
Translated from spanish Improve translation
Bone marrow transplantation with healthy donor
Posted Sep 24, 2017 by Leonor 400

Leukodystrophy treatments

Leukodystrophy life expectancy

What is the life expectancy of someone with Leukodystrophy?

4 answers
Celebrities with Leukodystrophy

Celebrities with Leukodystrophy

1 answer
Is Leukodystrophy hereditary?

Is Leukodystrophy hereditary?

3 answers
Is Leukodystrophy contagious?

Is Leukodystrophy contagious?

2 answers
ICD9 and ICD10 codes of Leukodystrophy

ICD10 code of Leukodystrophy and ICD9 code

2 answers
Natural treatment of Leukodystrophy

Is there any natural treatment for Leukodystrophy?

3 answers
Living with Leukodystrophy

Living with Leukodystrophy. How to live with Leukodystrophy?

3 answers
Leukodystrophy diet

Leukodystrophy diet. Is there a diet which improves the quality of life of ...

3 answers

World map of Leukodystrophy

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Stories of Leukodystrophy

LEUKODYSTROPHY STORIES
Leukodystrophy stories
LAUREN
Lauren was diagnosed with Hypomyelnation and Atrophy of the Basal Ganglia and Cerebellum (H-abc) Leukodystrophy at the age of 6 months by the neurology team at The Children's Hospital of Eastern Ontario.     Lauren is blind, non-mobile, non-verb...
Leukodystrophy stories
INFANT KRABBE DISEASE
http://codziennosckrabika.blogspot.com/
Leukodystrophy stories
ALD/AMN
My father had AMN but was misdiagnosed as having MS. He died at the age of 49 due to adrenal failure. My nephew Danny started having problems when he was about 9 years old and that is when the diagnosis of ALD was given and we figured out that was wh...
Leukodystrophy stories
GUILHERME PEREIRA DA SILVA MARQUES'S STORY
O meu filho, Guilherme foi diagnosticado em Janeiro 2014 com Leucodistrofia Metacromática. O primeiro sintoma foi com perda na marcha foi o que nos despertou a atenção de que poderia ter alguma coisa. Em Portugal não existe tratamentos, mas desco...
Leukodystrophy stories
SARA'S STORY

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Leukodystrophy forum

LEUKODYSTROPHY FORUM
Leukodystrophy forum
MY SON, CHRISTOPHER DIED FROM KRABBE LEUKODYSTROPHY
I wouldn't mind being an ambassador, but I don't have this crappy disease, I am only a carrier. My son had the disease and he died in 1977. Also I don't think I can afford a DNA test... isn't there another way to become an ambassador?

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