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What is the life expectancy of someone with Lichen Sclerosus?
Life expectancy of people with Lichen Sclerosus and recent progresses and researches in Lichen Sclerosus
Lichen Sclerosus is geen levensbedreigende aandoening, wel kan bij een klein percentage patiënten vulvakanker ontstaan (bij ca. 2 tot 6 %). Er is een nieuw smeerschema waarbij er intermitterend word doorgesmeerd, dat betekend een aantal achtereenvolgende dagen per week (3 à 4) met corticosteroïden (DermovateZALF) en vette zalf smeren en een aantal dagen (3 à 4) achtereen alleen met vette zalf smeren, óók als er géén of nauwelijks klachten zijn.
Posted Mar 12, 2017 by Anita Corte-Degen 1420
Posted Apr 7, 2017 by Beabow 1000
LS should not shorten the patient’s life.
Posted Oct 7, 2017 by Cindy 3050
Lichen Sclerosus does not affect length of life.
Posted Oct 8, 2017 by LBelle 1550
A long life if LS symptons minimised and maintained. Ignoring it or mistreating LS can lead to other more dangerous conditions such as 'cancer of the vulva'.
Posted Oct 9, 2017 by annie-mcg 2000
Honestly, from what I know it doesn’t change your life expectancy. You can get it at any age, many people have lived years with this disease.
Posted Aug 25, 2018 by Tbreck 2500
There is a slight chance of getting vulva cancer. There is a normal life expectancy.
Posted Oct 11, 2018 by Allicia 2500
This disease is not known well enough for data on life expectancy, it is a prelude to possible cancer.
Posted Apr 26, 2019 by Kelly 3100
Normal life expectancy
Posted Apr 28, 2019 by Debbie 1680
LS doesn't affect life expectancy. The only reasons to be concerned are if you show symptoms of Vulval Cancer especially if you have a sore or ulcer that lasts longer than a month. it's especially important to check your vulva once a month and note any changes. The earlier Vulval Cancer is diagnosed the better the outcome.
Posted May 26, 2019 by Emma 3560
Same as anyone else. However it does increase stress levels
Posted Jun 12, 2019 by Ljstafford 1600
I feel that ones life expectancy is controlled by their life style and comorbidity. Will LS kill you, NO. However, if yours grows into cancer like mine did then life gets compromised. The chemo damaged my kidneys. The cancer recurs every 2 years in a different area. My expectancy is cut short not by LS itself but the secondary issues becasue of the LS. Cutaneous Squamous Cell Carcinoma of the vulvar is mostly caused by LS. if untreated the cancer invades the lymph nodes and head to the lungs. Once you get the CSCC it may recur the 2nd time within 10 years After the 2nd or 3rd removal the 2 year recurring rate goes 61.9 %. It is not easy surgery. you must be constant aware of increased pain, itching, bleeding and changes in the color. Remember this is the figure 8 disease that may include the entire genital area and the peranall area.
Posted Aug 22, 2019 by Diann 2500
