Short answer · Medically reviewed summary · Last updated: 2026-05-08

Lichen sclerosus, a chronic inflammatory skin condition, is most commonly referred to by its medical name, though it was historically known as lichen sclerosus et atrophicus. While clinicians now prefer the streamlined term lichen sclerosus to accurately reflect the disease's pathology, you may encounter various legacy names in older medical records or international literature. What are the historical and alternative names for lichen sclerosus? Historically, this condition was frequently labeled lichen sclerosus et atrophicus, a name that emphasized the thinning (atrophy) of the skin, which is not always present in every patient.

5 people with Lichen Sclerosus have shared their first-person experience on this question at DiseaseMaps.

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Lichen Sclerosus synonyms

Other names for Lichen Sclerosus: synonyms, acronyms and related terms used by doctors and patients.

Lichen Sclerosus is also known as...

Lichen sclerosus, a chronic inflammatory skin condition, is most commonly referred to by its medical name, though it was historically known as lichen sclerosus et atrophicus. While clinicians now prefer the streamlined term lichen sclerosus to accurately reflect the disease's pathology, you may encounter various legacy names in older medical records or international literature.



What are the historical and alternative names for lichen sclerosus?


Historically, this condition was frequently labeled lichen sclerosus et atrophicus, a name that emphasized the thinning (atrophy) of the skin, which is not always present in every patient. Because the disease can affect different areas of the body, older literature or specific sub-specialty texts may refer to it using localized terms, though these are now generally considered descriptive rather than diagnostic. Understanding these synonyms is vital for patients researching their condition across international databases and legacy medical records.



Why are there multiple names for this condition?


Medical nomenclature for lichen sclerosus has evolved alongside our understanding of its pathophysiology. The shift away from "et atrophicus" occurred because clinicians recognized that the condition is a chronic inflammatory dermatosis that does not always result in visible atrophy. Reclassifying the name ensures that lichen sclerosus is treated as a distinct entity in global medical registries, preventing confusion with other lichenoid skin disorders.



How is lichen sclerosus classified in medical systems?


Major medical organizations utilize standardized codes to ensure consistent diagnosis and billing for lichen sclerosus. Common identifiers include:



  • ICD-10: L90.0 (Lichen sclerosus et atrophicus)

  • Orphanet: ORPHA:539 (Lichen sclerosus)

  • OMIM: 152480

  • NIH GARD: ID 6898



Which name is preferred by medical professionals?


Modern clinical practice almost exclusively uses the term lichen sclerosus. Our community of 545 members at DiseaseMaps.org often reports that clarity in terminology helps when consulting with specialists, as it aligns with current dermatological and gynecological standards. Using the current, preferred name ensures that your health records accurately reflect your diagnosis without the confusion of outdated terminology.



Next steps



  • Consult with a board-certified dermatologist or gynecologist to confirm your diagnosis using current terminology.

  • Join the 545 members of our lichen sclerosus community on DiseaseMaps.org to share experiences and access peer-supported resources.

  • Keep a record of your pathology reports, noting the specific terminology used by your pathologist for future reference.



Medical disclaimer: This content is for informational purposes only and does not constitute medical advice, diagnosis, or treatment; always seek the advice of your physician regarding a medical condition.



References



  • NIH Genetic and Rare Diseases Information Center (GARD): Lichen Sclerosus

  • Orphanet: Rare Disease Database (ORPHA:539)

  • OMIM (Online Mendelian Inheritance in Man): Entry #152480

  • American Academy of Dermatology (AAD) Clinical Guidelines

Author: DiseaseMaps Editorial Team
Reviewed against authoritative medical sources (NIH GARD, Orphanet, OMIM)
Last updated: 2026-05-08
Medical disclaimer: This information does not substitute professional medical advice. Always consult your doctor before making health decisions.
Source: DiseaseMaps.org
6 answers
LS, white spot disease

Posted Aug 25, 2018 by Tbreck 2500
The Chinese call it the white skin disease.

Posted Oct 12, 2018 by Allicia 2500
LS or lichen sclerosis

Posted Apr 26, 2019 by Kelly 3100
LS, Lichen Sclerosus

Posted May 26, 2019 by Emma 3560
LS
LS & A (out dated)
White spot disease
figure 8 disease
Csillago Disease
Hallopeau disease
guttate Scleroderma
Von Zambusch disease
In my 18 months of talking with ladies from all over the world when they translate to English the disease is LS or Lichen Sclerosus. Some of my doctors who have practiced for 25+ years refer to it as LS&A. The nomenclature changes bottom line the disease isn't getting better no matter what we call it.

Posted Aug 22, 2019 by Diann 2500

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Stories of Lichen Sclerosus

LICHEN SCLEROSUS STORIES
Lichen Sclerosus stories
Just diagnosed last year. Symptoms have now started to become uncomfortable and are worse than I thought they were. Not taking any treatment. Dermatologist told me to only use the steroid cream if the symptoms were bad. discovered the facebook page 2...
Lichen Sclerosus stories
Diagnosed in 2011 at the age of 47, after the initial itching rash was resolved by Clobetasol, the only remaining symptom was painful intercourse. Then, a couple years later I started having mostly daily burning of the vulva, and irritation of the u...
Lichen Sclerosus stories
Diagnosed aged 40. Went into remission using clobesterone ointment. Began flaring slightly before periods as menopause began. Currently aged 53 and experiencing disappearance of architecture. Not much in way of itching thank goodness. No tears. I use...
Lichen Sclerosus stories
After a diagnosis of RA in 2001 the goal was to keep going. I finally took an early retirement in 2006. Chronic Fatigue soon became evident. In 2016 my symptoms began manifesting themselves. I thought it was a yeast infection. I thought I had an...
Lichen Sclerosus stories
Started itching April 2016 used various creams over the counter at chemist

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I have a friend who works in disability approvals. They told me a % approval was granted to an applicant.

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