7
Living with Lupus. How to live with Lupus?
Living with Lupus: how patients cope day to day and stay positive - real experiences and practical tips.
It can & has been very difficult to live with lupus. I have experienced depression & isolation through this disease. I have felt frustrated at the loss of my independence and freedom. I have found counselling, therapeutic yoga and pain management support groups to be effective in returning me to happiness. The support & understanding of my family is probably the most critical component to my happiness. Also fighting through isolation, reaching out to others & learning how to self manage chronic pain is crucial for happiness.
Posted Sep 1, 2017 by Ailsa 2000
Pace yourself, know your current state of health, and stay within those limits. Yes you can be happy.
Posted Sep 8, 2017 by MaryAnn 700
You can be happy. Disease management and proactivity is key. Take all meds, go to all appointments and follow your doctor's advice. Recognize depression symptoms if disease is active and seek help.
Posted Sep 10, 2017 by Tina 1750
Try to do and find things that bring you joy. Find an outlet for feelings and emotions. Keep a journal. Try to prevent flares if possible.
Posted Jan 29, 2018 by Kimcita 2600
Do what the doctors tell you to do, find what medication works for you, keep ypur mind occupied with positive things and laugh as much as you can and refuse to let the disease consume your life.
Posted Dec 12, 2019 by Misspriss580 1750
Always hold onto hope.
Posted Nov 2, 2022 by RonnieJ 3350
Translated from spanish
Improve translation
trying to live day to day I guess. It is quite difficult to keep good mood or happiness all the time
Posted Feb 19, 2017 by Stella 1000
Translated from spanish
Improve translation
never leave medicines. learn to live with the disease, be positive to consult our doctor regularly and make sport accompanied by a healthy diet
Posted Feb 22, 2017 by Mambo 1101
Translated from spanish
Improve translation
Oh you know about our disease, educate ourselves and educate those around us. Accept us and care for us.
The support of our families and loved ones is vital. But above all the love of their own.
The support of our families and loved ones is vital. But above all the love of their own.
Posted Mar 8, 2017 by Verónica 1000
Translated from spanish
Improve translation
As any person. By avoiding the sun. Of course q can you be happy. To be happy we must be grateful for each day q woke up.
Posted May 10, 2017 by Suyai 1000
Translated from portuguese
Improve translation
Living with Lupus is difficult I'm not going to lie, the pain rare bother you a lot, more the yes with support, love, and faith anything is possible, if you accept and a way to be happy, accept that you have a disease this is not the end of the world, you do not and less human for it, and not call for comments to be offensive and prejudice, if you love very much, not and a weight to be Lupica/o, and a fight that we all win the day, remember the God of your best battles to his best warriors
Posted Jun 7, 2017 by Nataly 1000
Translated from spanish
Improve translation
Ok that one has a disease to stop seeing it as a limit, understand that it is a challenge, which is part of one and not hate what is of one. Smile as much as possible and especially to avoid the stress.
Posted Aug 22, 2017 by Giovanna 100
Translated from spanish
Improve translation
With lupus, not living it is surviving, but leading a quiet life, with certain routines, being in a group for example of the Face or in associations, surrounding you with positive people, you can be happy especially if you know that you are not alone in the struggle, commenting on what happens to you with people who like you have lupus.
Posted Aug 31, 2017 by Prado 2000
Translated from spanish
Improve translation
of course you can be happy, what is important is to have the unconditional support of the family, in addition to have a healthy mind, if it is necessary to go to a psychologist there you go not save anything, and if there are to laugh or to cry do it.
Posted Aug 31, 2017 by lissette 2222
Translated from spanish
Improve translation
If you can. You have to accept the enfermerdad know llavarla and not obsess.
If you have a positive attitude you can bring well lupus.
If you have a positive attitude you can bring well lupus.
Posted Aug 31, 2017 by Rosa Maria 2000
Translated from spanish
Improve translation
LIVING WITH LUPUS IF YOU MAY BE LEADING AN ORDERLY LIFE , TAKING THE
MEDICATION,DOING EXERCISES AND TAKING THE CONTROLS MEDICAL THE DAY... IF YOU CAN LIVE WITH LUPUS AND LEAD A HAPPY LIFE, JUST DEPENDS ON YOURSELF
MEDICATION,DOING EXERCISES AND TAKING THE CONTROLS MEDICAL THE DAY... IF YOU CAN LIVE WITH LUPUS AND LEAD A HAPPY LIFE, JUST DEPENDS ON YOURSELF
Posted Sep 2, 2017 by patricia santander galaz 1100
Translated from spanish
Improve translation
Enjoy each day take care to not fall happiness depends upon ourselves the desire to get ahead
Posted Oct 3, 2017 by FABIOLA 2010
Translated from portuguese
Improve translation
Yes! We can be very happy with Lupus!! We can take advantage of this situation to make a self - knowledge, discover the moments that Lupus is triggered in the body, what the reasons, knowing these reasons will give us the security to deal with this reality. Work these reasons internally to learn how to deal with them. My opinion is that the Lupus is used for a self-profound knowledge, the more vc you know your body, your limitations, your true emotions away from the lupus of your life!
Posted Oct 20, 2017 by Cristiane de Lucena 1000
Translated from spanish
Improve translation
We do not choose to live with Lupus but we can choose to live happy! Cheer up!
Posted Oct 21, 2017 by Denis 800
Translated from spanish
Improve translation
With lupus and without lupus, you should live to be positive, we have come to this world to be happy, so don't give up and follow your dreams.
Are you mism@, agradecid@ of every day life it allows you to open your eyes and you can see everything around you.
We're not living dead, LIVE!!!
Are you mism@, agradecid@ of every day life it allows you to open your eyes and you can see everything around you.
We're not living dead, LIVE!!!
Posted Oct 24, 2017 by Pilita 2190
