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Question - Madelung Deformity

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Should I let my doctor know that I have madelung’s if their treating me for a broken wrist of something

Asked 7 years ago Nathan 3651

say for example I fell and I broke my wrist, should I let my doctor know about my condition? Do they have to treat it differently because of my condition?

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yes you definitely have to! the disease is very complex so if you break your wrist or something, you should see a specialist who knows about madelungs and not just any doctor. 'normal' doctors will see that there's a deformity in you wrist, but they probably don't know what it is. so they will treat it differently and probably in a wrong way. my advise is to find a specialist (if you don't have one already) and if something happens, call him first. 

if you like to know more about madelungs, we have a support group on facebook: Madeling's Wrist Deformity. you can ask all of your questions there and get the support you need! 

Answered 7 years ago Ellis 621
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Yes, definitely! My radiographer couldn't believe my x rays, and when he showed them to me, compared to a normal wrist I could see how deformed mine were. I am seeing a hand specialist next month who knows about the condition. I would suggest you find the same, because ordinary doctors, or even orthopedic specialists don't know enough about it. 

Answered 7 years ago Barb 10