Story about Marfan Syndrome .

A Marfan Syndrome story

Dec 28, 2015


Long family history of Marfans with over 13 people in my family who have it.  Dad passed away in '87 and i was always told I only have symptoms but no official diagnosis. My daughter had very typical Marfan features then I had genetic testing done in 2012 that confirmed me and my daughter positive for Marfans. My other 2 kids are not. 

Know someone who should read this story? Share it

0 comments

Login or register to leave a comment


Marfan Syndrome treatments

What are the best treatments for Marfan Syndrome?

Latest progress of Marfan Syndrome

What are the latest advances in Marfan Syndrome?

Marfan Syndrome symptoms

Which are the symptoms of Marfan Syndrome?

Is Marfan Syndrome contagious?

Is Marfan Syndrome contagious?

History of Marfan Syndrome

What is the history of Marfan Syndrome?

Prevalence of Marfan Syndrome

What is the prevalence of Marfan Syndrome?

Marfan Syndrome jobs

Can people with Marfan Syndrome work? What kind of work can they perfo...

Celebrities with Marfan Syndrome

Celebrities with Marfan Syndrome