- Mastocytosis and MCAS
- Interviews
Noor's interview
How did all start?
I was born
Do you already have a diagnosis? How long did it take you to get it?
Yes I am diagnosed. It took 18 months from when my allergist suspected it to get diagnosed. I was really sick for 6 months prior to that, but I have had reactions all my life.
For what medical specialties have you been treated? What has been the most useful specialty for your?
Mast cell activation disorders
What has been the most useful thing for you so far?
Medication
What have been your biggest difficulties?
Food, I react to most of it.
How has your social and family environment reacted? Have your social or family relationships changed?
Yes, my recent flare lasted so much longer, several months and I didn't see many people.
What things have you stopped doing?
Eating most food. Trying via plane and car road trips. Working. Sexual relationships. Most recently I had to stop hiking and going out on sunny days.
What do you think about the future?
I hope it will be better
So far, which years have been the best years in your life? What have you done during them?
My twenties, I was part of a start up, I traveled a lot, had many dangling relationships, and had a lot of fun.
What would you like to do if you didn’t have your condition?
Sleep more, travel, buy perfume, eat pizza and chocolate eclair.
Give blood.
If you had to describe your life in a sentence, what would it be?
Indominable
Finally, what advice would you give to a person in a similar situation?
Do what you can when you can.
Do the best you can.
Don't panic.
