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What is the life expectancy of someone with Medullary Sponge Kidney?

Life expectancy with Medullary Sponge Kidney: what research and real patients say, recent advances, and a medically reviewed summary with sources.

Medullary Sponge Kidney life expectancy
8 answers
As long as the disease is managed properly then you will live to a ripe old age

Posted May 21, 2017 by Brooke 2100
Medullary Sponge Kidney is not fatal. This disease rarely ever causes renal failure. Most common complications are stones and infections, follow a stone diet to aid in the prevention of stones, good exercise to stay healthy and follow your doctors plan for when infections or stones become a problem.

Posted May 24, 2017 by Angel 2290
Unknown. I honestly do not know

Posted Jun 17, 2017 by SaraKay423 2170
You most likely will live a full life with msk however their are complications that may arise with having this disease like renal failure as your kidney function can slow down based on how severe your kidneys are effected by the disease... a lot of people are still dealing with only a few stones every few month and managing to live somewhat of a normal life and could be even able to hold down a part time job or even a full time job if your kidneys allow it others may end up having a stone block the kidney to where the back up of urine Can cause you to become septic ( an infection of the blood) because if the urine does not get out it will become infected and if not found in time for treatment of antibiotics and emergency surgery... you could die from what doctors consider “complications of msk”. But if your kidney function only ends up failing you will end up requiring dialysis As needed to help clean your kidneys like they would normally do if function is 100% and if or when dialysis stops working you will be required to have a kidney transplant that most likely will help a lot and for an unknown time to when your body will then cause this new kidney(s) will start to creat more stones as time goes on... but for a small few I know you could end up with the second chance of a msk free life after a transplant But as msk is more of a systematic disease that normally only effects your kidneys you could have a high risk of forming more stones again later on in your life

Posted May 27, 2018 by Cecilia 4100
Medullary Sponge Kidney (Cacchi-Ricci Disease) is considered benign, and long-term prognosis is excellent.

Rarely does it lead to kidney disease or permanent damage but it is indeed possible! There is NO cure for this disease. Patients life expectancy can be effectively prolonged with measures to treat any problems quickly, prevent the serious complications, get regular checkups and follow your specialists directions.

Posted Jul 31, 2018 by Shannon Bauer 4190
My mother had this disease and lived with it until 96-1/2 years old. I think that’s a good run!

Posted Feb 20, 2022 by J Smith 200
I am 53 and am in end stage waiting for confirmation of diagnosis. My kidneys are more stone than tissue. Guess I'm in that 10% that do have kidney failure. C'est la vie.

Posted Oct 25, 2022 by Fiona 100
Magnesium Oxide keeps stones from forming and unbinds formed stones. Research from NIH, CDC and other research both clinical and peer reviewed on the interwebs. Read my story for what I experienced. I hope this helps EVERYONE suffering from kidney stones.

Posted Jan 5, 2023 by Roxanne 600

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MEDULLARY SPONGE KIDNEY STORIES
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Shannon grew up in Dearborn Heights, a city in the Detroit metropolitan area in Michigan. She grew up in a family who actively participated in church functions such as singing in the choir, teaching Sunday school and performing in church plays. Sha...
Medullary Sponge Kidney stories
A couple of times as a child I got a few urinary tract infections and it was never a very big deal, when I was a teenager, I got a couple of kidney stones.  When I was pregnant I got kidney stones with each pregnancy, each pregnancy seemed to come w...
Medullary Sponge Kidney stories
I was first diagnosed a few months after my daughter was born. What I thought was a simple UTI moved up through my bladder, up my ureters, and settled in my kidney. I've felt them ever since. It's a weird sensation knowing where your kidneys are at a...
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I was diagnosed with medullary sponge kidney in August of 2016. I have been struggling with symptoms since 2009, my freshman year of high school. I spent years of having tests done, and no answers. And ever tests done for my kidneys. It was always my...
Medullary Sponge Kidney stories
I have delivered with no drugs or procedures, all natural and can attest that a kidney stone pain is much more painful......as have passed more than 100 kidney stones. i was 24 in 1978 and excited about recently becoming an RN. Working in ICU was my...

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