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Which advice would you give to someone who has just been diagnosed with Melorheostosis?
Advice for the newly diagnosed with Melorheostosis, written by people who have lived it. What they wish they had known on day one.
Pray and praise God through it.
Elevate the affected limb.
Moderate activity works well for me.
If I stay sedentary for too long the pain is worse.
Elevate the affected limb.
Moderate activity works well for me.
If I stay sedentary for too long the pain is worse.
Posted Sep 14, 2017 by MicheleD 100
If you doctor doesn’t know much about the disease (which was the case for me) you need to look online to research any possible study or info you can find. Find out what your personal limitations are, and don’t push yourself too hard.
Posted Feb 3, 2020 by Abby Ellender 1300
