A Moebius Syndrome interview .

Maridel Carapatan's interview


How did all start?

When i gave birth with my first born Paula

Do you already have a diagnosis? How long did it take you to get it?

Misdiagnosed at first 4months of her life.

For what medical specialties have you been treated? What has been the most useful specialty for your?

Developmental Pediatrician Therapies ot, pt, speech Dentist oral rehab

What has been the most useful thing for you so far?

As of now her nebulizer.

What have been your biggest difficulties?

When she got sick. Usually respiratory problem.

How has your social and family environment reacted? Have your social or family relationships changed?

No, i just explained them about moebius syndrome. And they help me also for the awareness.

What things have you stopped doing?

Need to stop working and focus to her.

What do you think about the future?

I hope that in the future the community will accept them because of their ability.

So far, which years have been the best years in your life? What have you done during them?

When i gave birth, i give all my best to take care of her and give awareness to everyone.

What would you like to do if you didn’t have your condition?

Just a smile from my princess

If you had to describe your life in a sentence, what would it be?

Complete

Finally, what advice would you give to a person in a similar situation?

Dont lose hope, there are so many people have bigger problems than yours. Keep your faith. Be kind to yourself. Love yourself.

Interview Moebius Syndrome

Jan 3, 2019

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