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Living with Muckle-Wells Syndrome. How to live with Muckle-Wells Syndrome?

Living with Muckle-Wells Syndrome: how patients cope day to day and stay positive - real experiences and practical tips.

Living with Muckle-Wells Syndrome
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Take one day at a time. You'll have good days and bad days. You will have pain a lot but pushing through is the hardest. You'll have days where you can't even do the house work and days where you feel like super woman/man. You are one In a million. Unique. We are the strong ones.

MWS Symptoms:
◾Rash
◾Joint pain
◾Eye redness/pain
◾Fatigue
◾Fever/chills
◾Hives
◾Pins and Needles sensation
◾Loss of libido
◾limb pain
◾clawfoot
◾skin thickening
◾infertility
◾nephrotic syndrome
◾small kidney
◾glaucoma
◾shriveled kidney
◾polycythemia
◾muscle pain
◾protein deposit in kidney
◾excessive glycine levels in urine
◾atrophy of cochlear nerve
Posted Feb 11, 2018 by Angelina 1850

Living with Muckle-Wells Syndrome

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