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A Multiple Endocrine Neoplasia interview .

Crystal's interview


How did all start?

It started with blood pressure issues after the birth of my youngest child

Do you already have a diagnosis? How long did it take you to get it?

Took almost 2yrs to get someone to listen. Have MEN 2a

For what medical specialties have you been treated? What has been the most useful specialty for your?

Endocrine diseases & thyroid cancer An endocrinologist has been most useful

What has been the most useful thing for you so far?

Listening to my body.

What have been your biggest difficulties?

Finding doctors locally with experience dealing with my disease

How has your social and family environment reacted? Have your social or family relationships changed?

There aren't many physical symptoms so alot of unbelief by others. My circle has gotten smaller

What things have you stopped doing?

Working

What do you think about the future?

I try not to

So far, which years have been the best years in your life? What have you done during them?

N/A

What would you like to do if you didn’t have your condition?

Everything

If you had to describe your life in a sentence, what would it be?

I'm always exhausted.

Finally, what advice would you give to a person in a similar situation?

Find a doctor who will listen to you & get a great support system.


Sep 3, 2019

By: Crystal

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