EMENA European Multiple Endocrine Neoplasia Alliance

The European MEN Alliance (EMENA) is an umbrella organisation formed in 2013 at a meeting in Munich, Germany. The Alliance consists of equal representation from European patient groups who provide information and support services to patients with multiple endocrine neoplasia (MEN types 1, 2, 3 and 4) and from the expert multidisciplinary medical professionals who care for them.

Mission

• To improve the diagnosis, care and lives of patients affected by MEN

Aims & Objectives

• to encourage and assist the foundation and development of new patient groups
• to establish a minimum set of standard guidelines regarding patient care
• to provide, through member organisations, information medically approved by advisors and moral support to those affected by MEN, and their relatives
• to work closely with medical professionals to promote awareness and understanding of MEN
• to encourage global scientific collaboration to enable work-up of long-term morbidity and mortality