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I am the caregiver of my 4 family members who suffer from this disease. My husband and our 3 daughters were diagnosed in 2013. Their treatment is in our hometown of St. Louis, MO. It spins my mind how this disease starts so simple but is far from...
I am 39 with a loving husband and two young kids and unfortunately MEN2A. I was diagnosed in the fall of 2015. I had recurrent hyperparathyroidism that I couldn't get any doctor to take seriously despite being a physician myself. I finally foun...
I was discovered to have MEN2a (c634) in 2000 after surviving a rather large and active phaeochromocytoma. Subsequently I was offered genetic testing and was then diagnosed with medullary thyroid cancer - my thyroid was removed. My son (then 2) a...
In April of 2016, My mother died right after she had surgery for a Meckles diverticulum and developed 2 blockages as she couldn’t ever quit having diarrhea and vomiting post surgery which lead to weakness and a diagnosis of Zollinger-Ellison. We n...