What is the life expectancy of someone with Multiple Endocrine Neoplasia?
Life expectancy with Multiple Endocrine Neoplasia: what research and real patients say, recent advances, and a medically reviewed summary with sources.
This depends on multiple things. I believe I have a long life expectancy and have had multiple issues with this disorder. 6 parathyroid removals with one remaining (more than most). Partial pancreas removal. Multiple stomach issues. Thyroid removal etc.
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I am 39 with a loving husband and two young kids and unfortunately MEN2A. I was diagnosed in the fall of 2015. I had recurrent hyperparathyroidism that I couldn't get any doctor to take seriously despite being a physician myself. I finally foun...
I am the caregiver of my 4 family members who suffer from this disease. My husband and our 3 daughters were diagnosed in 2013. Their treatment is in our hometown of St. Louis, MO. It spins my mind how this disease starts so simple but is far from...
I was discovered to have MEN2a (c634) in 2000 after surviving a rather large and active phaeochromocytoma. Subsequently I was offered genetic testing and was then diagnosed with medullary thyroid cancer - my thyroid was removed. My son (then 2) a...
In April of 2016, My mother died right after she had surgery for a Meckles diverticulum and developed 2 blockages as she couldn’t ever quit having diarrhea and vomiting post surgery which lead to weakness and a diagnosis of Zollinger-Ellison. We n...