Which advice would you give to someone who has just been diagnosed with Multiple Endocrine Neoplasia?

Advice for the newly diagnosed with Multiple Endocrine Neoplasia, written by people who have lived it. What they wish they had known on day one.

1 answer

Just breathe. It is a lot to take in. However with a positive attitude you can get through the ups and downs some days are harder than others and we can help each other.

Posted Oct 25, 2017 by Mrcperk 2000

Multiple Endocrine Neoplasia advice

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Stories of Multiple Endocrine Neoplasia

MULTIPLE ENDOCRINE NEOPLASIA STORIES

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ELEY FAMILY

I am the caregiver of my 4 family members who suffer from this disease. My husband and our 3 daughters were diagnosed in 2013. Their treatment is in our hometown of St. Louis, MO. It spins my mind how this disease starts so simple but is far from...

776

7/13/26, 7:40 AM by Amanda

MEN2A

I am 39 with a loving husband and two young kids and unfortunately MEN2A. I was diagnosed in the fall of 2015. I had recurrent hyperparathyroidism that I couldn't get any doctor to take seriously despite being a physician myself. I finally foun...

776

by Mary

MEN2A AND AN ORGANISATION

I was discovered to have MEN2a (c634) in 2000 after surviving a rather large and active phaeochromocytoma. Subsequently I was offered genetic testing and was then diagnosed with medullary thyroid cancer - my thyroid was removed. My son (then 2) a...

697

by Jo

HERITAGE

In April of 2016, My mother died right after she had surgery for a Meckles diverticulum and developed 2 blockages as she couldn’t ever quit having diarrhea and vomiting post surgery which lead to weakness and a diagnosis of Zollinger-Ellison. We n...

469

2/21/18, 12:44 PM by Lou

Which advice would you give to someone who has just been diagnosed with Multiple Endocrine Neoplasia?

Advice for the newly diagnosed with Multiple Endocrine Neoplasia, written by people who have lived it. What they wish they had known on day one.

Multiple Endocrine Neoplasia advice

What is the life expectancy of someone with Multiple Endocrine Neoplasia?

2 answers

Celebrities with Multiple Endocrine Neoplasia

1 answer

Is Multiple Endocrine Neoplasia hereditary?

3 answers

Is Multiple Endocrine Neoplasia contagious?

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ICD10 code of Multiple Endocrine Neoplasia and ICD9 code

2 answers

Is there any natural treatment for Multiple Endocrine Neoplasia?

3 answers

Living with Multiple Endocrine Neoplasia. How to live with Multiple Endocri...

2 answers

Multiple Endocrine Neoplasia diet. Is there a diet which improves the quali...

3 answers

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