- Multiple epiphyseal dysplasia
- Interviews
Sandee's interview
How did all start?
At birth
Do you already have a diagnosis? How long did it take you to get it?
10 yrs old
For what medical specialties have you been treated? What has been the most useful specialty for your?
Cotazone shots
What has been the most useful thing for you so far?
None
What have been your biggest difficulties?
Steps squat run walk more then 10 min
How has your social and family environment reacted? Have your social or family relationships changed?
My two sisters have it to but not my brother
What things have you stopped doing?
Everything,
What do you think about the future?
In pain
So far, which years have been the best years in your life? What have you done during them?
Sing
What would you like to do if you didn’t have your condition?
Travel steps walking going in the water at the beach
If you had to describe your life in a sentence, what would it be?
People can't see my pain, but they also don't wanna hear how much pain I'm in, n I can't take any meds
Finally, what advice would you give to a person in a similar situation?
Glad I'm a female would have been alot harder for a man
