- Multiple Systems Atrophy
- Interviews
Jnrutan's interview
How did all start?
Weakness on left side of body
Do you already have a diagnosis? How long did it take you to get it?
One year-6 months with GP, 6 months with neurologist
For what medical specialties have you been treated? What has been the most useful specialty for your?
Movement Disorder Specialist
What has been the most useful thing for you so far?
Support group, these people understand because they are going thru same thing
What have been your biggest difficulties?
Balance and weakness, blood pressure concerns
How has your social and family environment reacted? Have your social or family relationships changed?
Instead of me being in charge and taking care of property and others, my wife has stepped in, we had to move
What things have you stopped doing?
About everything, driving, maintenance
What do you think about the future?
Bleak
Finally, what advice would you give to a person in a similar situation?
Find a support group
