A sensation I experience

My brother did that. The doctor stated it was the muscles. As this disease progresses, weakness can take over. I don't know about the standing up. It seems it would be worse. I definitely can understand the lying down. It would lesson the work the body has to do

I am a Japanese neurologist. I experienced patients who developed such symptom. I consider that it is one of cerebellar symptoms associated with MSA. However, patients with a disease of the internal ear also develop such symptom, it is important to be checked such diseases. 

 

Yes, my late husband often felt this way especially when his blood pressure would deviate.  He would also become a bit nauseous, but never severely.  Often the sensation would diminish if he reclined in his power chair or his lift chair. 

That could be related to blood pressure.  A high number of MSA patients have neurogenic orthostatic hypotension or blood pressure problems. which means their pressure changes due to their position, if they lay down it goes up and if they stand up/sit up, their BP goes down.  I don't know where you are from but in the USA, we have a few meds on the market to help with such problems: midodrine, fludrocortisone, pyridostigmine and now a new med called Northera (Generic Name: Droxidopa or L-DOPS). First, you need to consult with your doctor and have him/her come to a diagnosis and treatment recommendations.  I am not a doctor but my brother had MSA and I started 2 charities in the US for the disease: DefeatMSA.org  and MSAshoe.org

-- Philip Fortier (Director, Defeat MSA & The MSA Shoe)