my husbands journey

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I am Debbie, Waynes wife and carer. I am adding to the map, and advising on his behalf as he is unable to.  Wayne started walking slower and stumbling in early 2009, he had his first fall in the summer, the same week we found out we were expecting our daughter. He also started to experience problems with urinary retention, and dizziness/passing out on standing, and balance problems. After many tests and admissions to hospital came back with no specific name for what he had, they said he had progressive ataxia. His symptoms progressed quickly and by Xmas was using a wheelchair, and by summer of 2010 he was mainly bed bound. He now suffers with so many symptoms, too many to list here, amongst them, seizures, which started in autumn 2015. This led to repeated tests which confirmed Msa type c . He takes lots of meds, for lots of symptoms. Please contact for more information or advice.