Stress levels low. Don't sweat the small stuff and it's all small stuff. Low physically demanding job and tasks
Figure out my limitations.
medicating regularly
Being mindful of what I put in and on my body
Surround yourself with positive people
Isometric resistance exercise equipment allowed me to exercise without getting exhausted
Supportive neurologist
Doctors who demonstrate an interest in patient understanding.
Pro-banthine along side pyrodistimine to combat stomach cramps
Hoping I have finally found a Neurologist that knows about MG.
gastric sleeve surgery
My kids!
Exercise and being outside as much as tolerated
Think smart before you do something that takes a lot of energ.
Acceptance and adaptability
ivig
Understanding the medication.
water
Medication helps from day to day. would be lost without it.
Cycling many more miles and still being able to compete in long distance races and Club Time Trials
two squares of dark chocloate when I feel crap
Spirituality
Sport
Thymectomy
Have something ready for the less good days - whatever works for you
Listening to my body and mind, acknowledging there are times/days I need to rest more
My therapy dog Lucy
Support from Family
My cat
caffine, but only paired with vitamin b12
forward thinking neuro
Homeopatia
nutrition helps a lot with energy
Less stress
Prednisone
Family Understanding and Support
Mi mamá,mi familia y algunos amigos cercanos
Trying to avoid gluten, dairy, and sugar
plasma and ratuxin
Learning everything about the disease.
Rituxan infusions / no other treatments 1000 mg every 8 -12 weeks slow but sure progress without plasma pharisis
I have not had a thymectomy, nor have i been in an MG Crisis.
Thymectomy 1 year ago, now meds Mestinon and Prednisone (now tapering.) Once/week plasmapheresis
Dont forget to bring your Mestinon everywhere
For the pain and tingling nortriptylin
Experience in knowing when to rest
Medications