Story about Myasthenia Gravis .

This is for my daughter- HATTIE who has MG

Jun 23, 2026


Hattie is now nearly 5 years old- she was diagnosed with MG in summer 2013 at age 2 1/2.  She had a thymectomy this past March 2015 and just weaned off steroids, which she has been on since diagnosis.  She had a positive antibody blood test for her diagnosis.  She has never been in a crisis, but we travel to Denver for her treatment.  Mestinon did not work for her- she was only on it for 2 weeks at the start of her diagnosis.  I am her mom- I am also a nurse.  I just started a new non profit with other MG caregivers that is a national endeavor- it is called MGKids.org

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