Stories of Narcolepsy

NARCOLEPSY STORIES

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HOW KRATOM SAVED MY LIFE, MY SANITY AND MY FAMILY.

I have suffered from chronic pain for 22 yrs. I have 5 bulging and herniated disc's, DDD, Fibromyalgia, CTS, CFS, Narcolepsy, PTSD (9/11) and recently due to Fibro I fainted and injured both ankles, both knees, R wrist and my neck from hitting my fac...

3943

7/13/26, 10:33 AM by Kelly Devine

I WAS MISUNDERSTOOD BY DOCTORS AND SURROUNDINGS.

If you have any questions or just want to chat, just contact me. :) It all started slowly in maybe february 2011. I had just finished being in a professional theater play for chritsmas a few months before, and troubles started in my family. I felt t...

1478

7/13/26, 10:33 AM by Sara

KLASSISK NARKOLEPSI

Jeg har klassisk narkolepsi med katapleksi, som først gav seg utslag i kraftig vektoppgang da jeg var 23 år gammel. Det skulle riktignok gå tolv år til før diagnosen ble satt - og på disse tolv årene var jeg innom en hel del forskjellige fastl...

1345

7/13/26, 10:33 AM by Vidar

SLEEP

I have narcelpsy and cataplexy

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7/13/26, 10:33 AM by polly

KARA'S STORY

I've had Narcolepsy with Cataplexy my whole life, but I wasn't diagnosed until 2008-2010. It took me a few years to find & build a relationship with a good sleep specialist. Right now I have medications that help me get by as a mother and part...

1083

by Kara

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Narcolepsy forum

NARCOLEPSY FORUM

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MEMORY LOSS

Anyone has experienced any kind of memory loss? I have problems to remember things just after doing or telling them and I think it could be related to the narcolepsy

2203

by Valentina

SEVERE BODY PAIN

Does anyone experience severe body pain? Especially upon waking up and if not moving frequently. I wake up in a lot of pain every moring. I know that I clench my muscles while I sleep (although I am trying to convince my Dr. otherwise) as I have been...

1982

by Lindy

XYREM AND WEIGHT

Does anyone currently/previously have/had problems with weight GAIN &/OR bloating from Xyrem? If so... Have you found anything that helps?

1372

by GinaB

ACTIVE NIGHTS

Has anyone ever noticed a corrolation between people who have narcolepsy and are also psychically sensitive?

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by Christine

REFRAMING MOOD... OR ANTIDEPRESSANTS?

I have been recently (like 1 month ago) diagnosed with Narcolepsy and also diagnosed with Sleep Apnea about 1 year ago. My question is maybe a but vague... Since this is alll so new to me, I've reaized that since I have had this condition for so many...

Narcolepsy prognosis

Prognosis of Narcolepsy: quality of life, limitations and outlook, from research and from people who live with it.