Philip's interview
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How did all start?
Fell into a rosebush 2 days later very ill, taken to hospital, placed into a coma for 5 weeks
Do you already have a diagnosis? How long did it take you to get it?
Had this diagnosis on day one
What has been the most useful thing for you so far?
Being able to walk
What have been your biggest difficulties?
Doing buttons up on clothing, door handles
How has your social and family environment reacted? Have your social or family relationships changed?
See family less, no contact for 3 years. See friends less mainly to do with COVID-19 pandemic. But generally we used to travel to them, but as 3 years ago we haven't now had a car.
What things have you stopped doing?
Anything physical get fatigued very easy
What do you think about the future?
I don't, I take everything day by day
So far, which years have been the best years in your life? What have you done during them?
When I was 16, joined the Army, see the world & meeting amazing people
What would you like to do if you didn’t have your condition?
Just be normal
If you had to describe your life in a sentence, what would it be?
Stagnant & uninspiring
Finally, what advice would you give to a person in a similar situation?
Comfort hopefully & guidance to help themselves discover support group's
