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Which advice would you give to someone who has just been diagnosed with Necrotizing fasciitis?

Advice for the newly diagnosed with Necrotizing fasciitis, written by people who have lived it. What they wish they had known on day one.

Necrotizing fasciitis advice
11 answers
Listen to your body and find an online support group!

Posted Jul 28, 2020 by Necrotizing Fasciitis Foundation
to get Psychological help. and work hard

Posted Mar 9, 2017 by Tim Timmy 2575
The best advice is to ask questions, as much as you can. Knowing what is going on, or having someone close to you with you who can ask these questions, is important also. Keep pushing for answers, and new treatments. I do wish I would of had other people on my list of people who they could talk to about my condition, such as my sister who is a nurse, and parents, etc... would have been helpful. I know with HIPPA now, there seems to be a less amount of people you can list on the form. I know when I was in ICU and heavily sedated, my sister was there and she was telling the nurses to keep the tv or radio on, that having the noise/voices was important. I still remember her saying that, she told my parents and husband the same thing. that I could hear everything and to talk to me as if I were awake and able to talk to them or listen to them.

Posted Mar 9, 2017 by Lauriann 1000
Pray and try to keep your sense of humor.

Posted Mar 29, 2017 by Elizabeth 1000
Listen to your body, and be your own advocate.

Posted Jul 28, 2020 by Hayden72 4070
Have patience, faith and take each day as it comes.

Posted Jul 28, 2020 by Georgia 1600
Take it seriously, act immediately, trust your medical team, pray.

Posted Oct 1, 2020 by Tammy 1950
Take a deep breath and realize this is a marathon, not a sprint. Set small goals-I celebrated sitting in a chair for 30 minutes. Always have a small goal and a long term goal. Know that it will take time for your body to heal and recover. Don’t give up!!!

Posted Jan 9, 2021 by Colleen 1300
Stay calm. Say your prayers and get treated NOW.

Posted Sep 23, 2021 by Karen 2450
Just hang in there. Depending on how quickly you get treatment, you may have to have surgery and spend quite a bit of time in the hospital. This too shall pass. You will get better.. it just takes time.

Posted Dec 18, 2021 by Celia 2200
It depends on treatments but if your treated you should be able to live a normal life span

Posted Aug 3, 2025 by Destiny ferris 2350

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I contracted NFS in 97 and spent 3 months in the hospitial with the fear of losing my leg , life or both. I flat lined 3 times within the first few hours of being there and had amnesia for a while after that. After 36 operations and a few nights of c...
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I saw my dad on new years 2018... and a few days later My dad had been thinking one day that he had the flu. He was by and a large a healthy 54 year old guy. played basket ball every week. He was resting in his recliner and said his butt went numb......
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suffering extreme pain in my left knee i attended my local emergency department. i was told i had torn ligaments go home wrap my leg in ice and take 2 paracetamol. 3 days later i was brought by ambulance to the same emergency department with stroke l...
Necrotizing fasciitis stories
It was November 16, 2006 is when I was diagnosed and treated for my NF. I had been feeling very achy and sore like a really bad flu that week. When I awoke on Saturday the 16, I hurt so severely that my 15 year old son wanted me to go to the ER but I...

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