Treatments for Norrie Disease: what real patients say works for them, alongside a medically reviewed overview citing sources like NIH GARD and Orphanet.
For most guys with Norries, there are few treatments. Some babies are able to have retinal surgery soon after birth, which preserves some vision. Some symptoms can be treated short-term.
Hello my name.is Kim . My son's name is Kyle he is gonna be 21 in 2 weeks and has Norries Syndrome. He is completely blind since birth . He is not currently wearing hearing aides as his hearing has gone down hill the last 2 years . He also has Asperg...