A miracle
Jan 30, 2016
By: Karley
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i was born on Good Friday in April of 2000, 1 month early with a very low heart not being able to process a large amount of amniotic fluid. I remained in the NICU for a little over 3 months. My mutation number is 20/27. I have multiple diagnosis to include: congenital central Hypoventilation syndrome (CCHS), Hirschsprungs and Crohn's disease, Autism, ehlers danios syndrome, hypoglycemia, epileptic seizures, bronchectasis. I am 24 hour ventilator dependent with oxygen and a feeding tube as well having no large intestine and part of my small. I love technology and spend slot of time on the Internet using my iPad, I love music, school and movies.
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