Breathe. Its; the hand you've been dealt. You are tough. You'll be ok. Find a good ortho who is knowledgeable on ON. Most important thing. Don't ask questions in support groups and rely only on the opinion of others. Everyone is different!! Have a good support system. Seek info.
Seek out an AVN Specialist or request your physician to send your medical records out for review by an AVN Specialist. Unfortunately, the patient is the only one that knows how you feel...and far too often it is up to the patient to pursue the treatments they feel they need. Educate yourself, I do feel some of the AVN WebSupport Groups are helpful and have good resources and links to speed up the learning process. You can learn from others. But I agree each individuals issues are your own.
Learn everything you can about it. Learn all the options. I Find a doctor who will partner with you, and then weigh everything with knowledge. The most important thing is to trust you medical care, and and doctor.
Seek out a doctor that has experience in the treatment of AVN/Osteonecrosis. It is a VERY rare condition that only affects 10-12,000 people a year. Finding a doctor that understands the disease is the most difficult.
It’s not the end of the world. You still have a life to live. Try the best that you can. Have faith that there is a remedy out there for you, not a cure, but a procedure to help alleviate some or most of your symptoms. Tell your family and close friends. You will possibly need there help at some time in the future. Again have faith. You’ve got this.
Find the why. Email [email protected]
Dr Glueck is a retired endocrinologist who has done many medical studies on AVN. Ask him to do a free assessment.
He will get to the bottom of the why and your triggers.
Then you can try to preserve your bone through CD
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Martin Luther said. " I have a dream"
Jennifer Montoya - AVN /ON Patient says
" I HAVE A PLAN"
The plan - help people like us - get ahold of me if you want to join a team of amazing people make the AVN/ON world a better place.
...
Good Evening,
My on line profile is listed as Jenny from the Block. I am 53, today in September 2018.
Until now, I have had a pretty wonderful and really tough life. My Holy Spirit has always been with me and brought me through many da...