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Which advice would you give to someone who has just been diagnosed with Osteonecrosis?

See some advice from people with experience in Osteonecrosis to people who have just been diagnosed with Osteonecrosis

Osteonecrosis advice
12 answers
Do whatever you can while you can!!!!!

Posted Jun 16, 2017 by Austin 4830
Breathe. Its; the hand you've been dealt. You are tough. You'll be ok. Find a good ortho who is knowledgeable on ON. Most important thing. Don't ask questions in support groups and rely only on the opinion of others. Everyone is different!! Have a good support system. Seek info.

Posted Jun 30, 2017 by Dave 2270
Seek out an AVN Specialist or request your physician to send your medical records out for review by an AVN Specialist. Unfortunately, the patient is the only one that knows how you feel...and far too often it is up to the patient to pursue the treatments they feel they need. Educate yourself, I do feel some of the AVN WebSupport Groups are helpful and have good resources and links to speed up the learning process. You can learn from others. But I agree each individuals issues are your own.

Posted Sep 27, 2017 by Alan 900
Learn everything you can about it. Learn all the options. I Find a doctor who will partner with you, and then weigh everything with knowledge. The most important thing is to trust you medical care, and and doctor.

Posted Nov 2, 2017 by Pamela 1600
Research treatments immediately and decide which one works best.

Posted Jun 11, 2018 by Rob 1500
Get an second opinion, look into the treatments get more information on it, and have a good think.

Posted Jun 11, 2018 by Megan 2500
Educate your self -become involved

Posted Jul 16, 2018 by Jenny from the block 900
Seek out a doctor that has experience in the treatment of AVN/Osteonecrosis. It is a VERY rare condition that only affects 10-12,000 people a year. Finding a doctor that understands the disease is the most difficult.

Posted Nov 13, 2018 by Scott 3050
It’s not the end of the world. You still have a life to live. Try the best that you can. Have faith that there is a remedy out there for you, not a cure, but a procedure to help alleviate some or most of your symptoms. Tell your family and close friends. You will possibly need there help at some time in the future. Again have faith. You’ve got this.

Posted Aug 27, 2019 by Cheryl 2800
Find the why. Email [email protected]
Dr Glueck is a retired endocrinologist who has done many medical studies on AVN. Ask him to do a free assessment.
He will get to the bottom of the why and your triggers.
Then you can try to preserve your bone through CD

Posted Feb 28, 2020 by Lisa j 1700
It's a rare disease so find support by looking for avascular necrosis (AVN) groups on social media sites like Facebook.

It's important to remember that there are successful treatments for osteonecrosis that take away the pain and return your physical activity.

Posted Mar 15, 2020 by Caitlin 3050
Translated from spanish Improve translation
Containment of the health care team. To receive information.

Posted May 18, 2017 by Javier 2150

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