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Living with Osteonecrosis. How to live with Osteonecrosis?
Living with Osteonecrosis: how patients cope day to day and stay positive - real experiences and practical tips.
Find what truly makes you happy, just make it something you can do.......skydive /swim/ bowl.....
Posted Jun 16, 2017 by Austin 4830
Again, really depends on how many joints affected, what stage, etc. Some people live totally normal lives. Some people cannot work and live in agony sadly. And many people in between. Unfort, a lot out of our control. Find a good doctor who knows ON
Posted Jun 30, 2017 by Dave 2270
It is possible to be Happy (at times) and in pain. You may need to adjust your life style and learn to accept that. Dont give up on seeking MDs and treatments for AVN that will improve your quality of life. Once you've done your best to solve the AVN puzzle, then it is up to you to find some happiness. I think it starts with liking who you are ... find a way to be happy with "who you are" !! Unfortunately I believe the quality and cost of healthcare and your healthcare insurance can greatly impact the Happiness factor!
Posted Sep 27, 2017 by Alan 900
I would give the same advice to someone with or without ON: do what you love, and love what you do. And love those who love you.
Posted Nov 2, 2017 by Pamela 1600
Surround yourself with people who will support and raise confidence.
Posted Jun 11, 2018 by Rob 1500
Is difficult at times but take each day as it comes is the best option
Posted Jun 11, 2018 by Megan 2500
Unknown at this time
Posted Jul 16, 2018 by Jenny from the block 900
In the very early stages, you may be able to do normal everyday things, but in the later stages those will become almost impossible. Catching the disease as early as possible increases your chances of major invasive surgery and may prolong your enjoyment of the things you enjoy doing.
Posted Nov 13, 2018 by Scott 3050
First and foremost have a good orthopedic doctor that is familiar with Osteonecrosis. Next be your own advocate and finally learn, learn, research all you can about Avascular Necrosis/Osteonecrosis. Try to be good to yourself, use ice or heat whatever works for you. And go on the Avascular Necrosis/Osteonecrosis support group web sites.
Posted Aug 27, 2019 by Cheryl 2800
It’s very debilitating May can progress fast and the bones collapse and replacement is needed.
Posted Feb 28, 2020 by Lisa j 1700
I was stuck in bed with unmanageable pain. I learnt to take each day as it comes. Trying to think through the whole process to come is overwhelming. I focussed on the next thing and getting to that point. Once I got there I'd look at my next goal.
Learn to ask friends and family to help you out. Get them to visit you so you can avoid extra pain. Ask them to bring a meal over so your partner can have a night off cooking. Ask someone to pass the butter instead of leaning across the table and getting it yourself. All those little bits of pain add up.
Do a pain management course. If you can't access one in person do one online. There are free courses available.
Learn to ask friends and family to help you out. Get them to visit you so you can avoid extra pain. Ask them to bring a meal over so your partner can have a night off cooking. Ask someone to pass the butter instead of leaning across the table and getting it yourself. All those little bits of pain add up.
Do a pain management course. If you can't access one in person do one online. There are free courses available.
Posted Mar 15, 2020 by Caitlin 3050
Translated from spanish
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If, with containment family and the environment.
Psychotherapy, meditation, yoga, acupuncture, moxibustion, well treating physician. acceptance of that is a chronic disease.
Psychotherapy, meditation, yoga, acupuncture, moxibustion, well treating physician. acceptance of that is a chronic disease.
Posted May 18, 2017 by Javier 2150
